• Working In One Voice

Programme Outline

17 NOVEMBER 2016
  • Making Rare Diseases an Asian Health Priority
Title Sponsor Lunch Address – By Invitation
  • Public Health and Rare Diseases
Medical Panel
  • Definition & Challenges in Rare Disease Management
Stakeholders Panel
(Targeted at Patients, Caregivers, Allied Healthcare Professionals, Therapists & Patient Support Organisations)
  • Building a Multi-stakeholder Eco-System for Rare Diseases
Networking Session - By Invitation
(Invited Guests: Physicians, Health Officials, Pharmaceutical Representatives, Patient Support Organisations)
  • Making the Voice of Rare Diseases Heard in Asia


18 NOVEMBER 2016
Plenary Workgroup Meetings
  • Understanding the Impact of Rare Diseases in Asia
  • Strategic Planning for Rare Diseases
  • Access for Medication
Stakeholder Training Sessions
  • Effective Communication Skills
  • Participation in Healthcare Making Decisions
  • Strategic Planning for Rare Diseases
  • Caring for the Caregiver


19 NOVEMBER 2016
  • Overcoming the Impact of Rare Diseases in Asia

Conference Venue

Hotel Pullman Bangsar

No Tower 3 59200, 1, Jalan Taman Pantai,
Taman Bukit Pantai, 59100 Kuala Lumpur,
Wilayah Persekutuan Kuala Lumpur, Malaysia

Phone: +60 3-2298 1888